Fetal Anomaly

Hopelessly in Love- International Down Syndrome CoalitionWith cases of fetal anomaly, we are faced with several emotional and physical challenges for the preborn child and the family. The diagnosis will play a large part in the child’s future, and it may even impact the mother’s health (during and after the pregnancy). The parents will have to come to terms with their child’s diagnosis and the effect that it will have on their future and their family. If a prenatal diagnosis returns unexpected results, the parents may be faced with questions that they never wanted to answer: Why? Why us? Why our baby? What will we do? How can I afford to care for this child? Will my child be happy? Will we be happy?

It is unarguably difficult and upsetting to learn that one’s preborn child may be born with disabilities or may even die before or soon after birth. This is devastating news for many parents, and we recognize that there will be sadness, frustration, and stress. 

While pro-aborts demand that we make exceptions for certain persons– claiming that the people involved will be spared suffering (e.g. emotionally, physically). However, abortion bears greater emotional and physical risks. (See more information about abortion risks here and here.) To recommend abortion in this case (or in any case) is not compassionate in that we know that abortion intentionally kills the child and can add further grief to the mother’s emotional burden.

The Pro-Life Answer to Fetal Anomaly Cases

Our objections to abortion in fetal anomaly cases include:

  1. The preborn child is a human being. As a human being, he or she deserves the right to Life that is protected by our constitutional law and promoted at large in society. To abort the child is to intentionally end his/her life.
  2. Even if the child is expected to die (during pregnancy or soon after), aborting the child will only add to the family’s grief. It forces the family to intentionally and violently end their child’s life.
  3. Carrying the child to term and spending a few final moments with the child allows the mother and the family to come to terms with their child’s death and to spend a short-time with their child before his/her passing. This child’s short life will be filled with love rather than violently ended in the womb.
  4. A child with a disability (e.g. mental or physical handicap) is no less of a human person than any other living person. They have the potential to have a life full of happiness regardless of their disability, and they should be respected like any other human being.

We affirm that the best moral and compassionate choice is to protect the life of the child, to support the mother throughout her pregnancy, and to assist the family in finding resources and support. If the child is expected to have a short life, the time with her child will give her a few precious memories and allow her to say good-bye. We recommend that parents facing their child’s death (soon after birth) seek perinatal hospice and palliative care resourcesIf the child is diagnosed with a non-life threatening disorder (e.g. Down Syndrome), we recognize that this child is precious, loved, and wanted, and we must support the family in finding the resources that they may need to give this child the best future possible.

Questions and Answers

When is prenatal testing done?

Prenatal testing includes screening and diagnostic tests throughout pregnancy. Screening tests (such as ultrasound, non-invasive blood tests and chorionic villi sampling) can be performed as early as 10 weeks. Diagnostic tests (such as amniocentesis) are typically performed after the 15th week of pregnancy.  Tests are used to identify such conditions as Down Syndrome, spina bifida, etc. Results are not necessarily conclusive, but may indicate a higher risk for a particular condition.

How does prenatal diagnosis affect a parent’s attitude towards the pregnancy?

Prenatal diagnosis can be a blessing in that it is often able to detect problems with the pregnancy or the child’s health and thereby provide the opportunity for doctors to better care for the mother and the child. Some parents find comfort in this knowledge.

I am so, so relieved that I had that ultrasound done that revealed what was to come. Having known his fate actually makes me feel like I had extra time, even though I would have had three remaining months whether I knew or didn’t know that he would die. Since it wasn’t the quantity of time that had changed, I guess it must have been the quality of time that had changed: I was able to really be present with him and more aware of him during those last months.—Susan

However, for some, the knowledge can overwhelm the parents and in turn cause them to make decisions out of fear and anxiety. In the United States, about 13% of abortions are committed due to the possible health issues with the child. (This is an estimated 130,000-150,000 children each year.) Moreover, it is shocking to realize that over 90% of preborn children diagnosed with Down Syndrome are aborted. Unfortunately, there is an overwhelming pressure to abort the child. Here is what one source stated:

Despite the shock and grief they may experience upon hearing the news of a fetal anomaly, the pregnant woman and her partner are usually urged to make the decision to terminate quickly. Behind the urgency is the physician’s desire to avoid complications of ‘late’ terminations of pregnancy. Because of the delays involved in amniocentesis, abortions may occur in the second and even third trimester pregnancy. In health care settings, the issue of such late abortions has raised ethical and legal questions. In one early study, most of the terminations occurred within 72 hours of the woman receiving the news of the abnormality. This hardly allows time for the couple to become informed about parenting children born with that anomaly and thus considering carrying through with the pregnancy. – from Attitudes of Patients after “Genetic” Termination of Pregnancy (British Medical Journal) 

What justifications for abortion do pro-abortion supporters offer in these cases? 

The most common themes among those who promote abortion in cases of fetal anomaly include the desires to spare the mother from the emotional pain of her child’s death, to eliminate the family the burden (e.g. financially, physically) of the child’s disability, and to prevent the possible suffering of the child. They ignore the fact that abortion kills a living human being and that the abortion will likely add to the women’s emotional burden.

If the child is going to die anyway, why not just get an abortion? Isn’t it the same outcome?

Here’s how one mother explained the difference in outcomes:

A perinatologist said things to us like “the outcome will be the same” even if we didn’t induce prematurely. Now that I’m stronger emotionally, I know that the outcome would not be the same. We would not have had all of the special time to share with Gianna during her life in my womb. We would not have been able to share some amazing, precious moments with our baby and our sons. —Jennifer

As Jennifer stated, the outcome was not the same as she initially thought. Yes, her child was going to die, but she did not play an active role in her child’s death. She was instead able to cherish the short life of her daughter, Gianna.

Abortion is the intentional ending of a child’s life. For this act, a mother will have to not only cope with the grief of the diagnosis and the death of her child, but she will also have to grieve for the part that she played in her child’s death. (Personal testimonies from post-abortive women show that abortion may lead to a lifetime of grief.) By carrying the pregnancy to term, a mother has the opportunity to cherish her child and to let her child go.

What about when the child will be born with a disability?

For children who will be born with a disability or a disorder, there are many organizations and support groups who are available to you to help you understand your child’s condition and to prepare you to care for your child.

Will the mother suffer mentally or emotionally from continuing such a pregnancy?

“Research suggests that women who terminate for fetal anomalies experience grief as intense as that of parents experiencing a spontaneous death of a baby (Zeanah 1993) and that aborting a baby with birth defects can be a “traumatic event … which entails the risk of severe and complicated grieving.” (Kersting 2004) One long-term study found that “a substantial number … showed pathological scores for post-traumatic stress.” (Korenromp et al, 2005) And a recent followup study found that 14 months after the termination, nearly 17 percent of women were diagnosed with a psychiatric disorder such as post-traumatic stress, anxiety or depression. (Kersting 2009) Termination is not a shortcut through grief. In contrast, parental responses to perinatal hospice are “overwhelmingly positive” (Calhoun & Hoeldtke 2000), and parents report being emotionally and spiritually prepared for their infant’s death and feeling “a sense of gratitude and peace surrounding the brief life of their child” (Sumner 2001).” — from PerinatalHospice.org

Testimonies from Parents

Parents who have traveled this path are the best experts of all. Here are some testimonies of parents who carried their child to term knowing that their children’s lives would be short:

I really have peace that we carried her to term. I know in my heart that I have given my daughter all that I could and loved her every day of her life.—Annette

For me, it felt more manageable to know that I had let nature take its course. And I gained a lot of strength and joy from the days I had with Alaina. Having it end sooner would not have decreased my suffering. And having it end later did not increase my suffering. It was maybe just a different kind of suffering. … If I could go back and tell myself one thing, it would be: “You will be OK.”Jill

This journey was beautiful because we were able to celebrate her life and not look at it as a tragedy. All our baby daughter will ever know is love. —John

She didn’t bring sadness. She brought joy, utter joy.James

Parents often say they’d do anything to keep their kids safe. For us, we feel like we were powerless in keeping Jonah alive, but to our best ability and our best understanding of the situation, we kept him as safe and as comfortable as we could. We were the best parents we could be for him.Heidi

My entire family wanted me to terminate (I still can’t bring myself to write “abort”). They thought it would be easier on me. In the end, everyone was so glad that I decided to continue. We all fell in love with her.—Jamie

By giving my son the protection of my body to face the announced death, I was giving him life, all of his life, so that it would be recorded in our family, in all of our history, and in the hearts of each of us. It wasn’t a morbid walk but a formidable surge of love. Isabelle

Someone asked us after Benedict died, “Was it worth it?” Oh, YES! For the chance to hold him, and see him, and love him before letting him go … For the chance for our children to see that we would never stop loving them, regardless of their imperfections? For the chance to give him everything we could? Oh, YES! Love your children, and remember that they each have their own unique mission. — Teresa Streckfuss

Here are some testimonies of parents whose children were born with disabilities:

You will never regret having the children that you have. You will always regret the children that you don’t have. — Mrs. Keller, mother of James Nicholas

Before you were born I only worried about how your disability reflected on me.  Looking at it now, there’s no better mirror in the world.  You can find the light in the darkest places of my soul and reflect them with a warmth that rivals the sun.  You’re my light in the dark and it’s a privilege to be your dad.Heath White

If I can keep one family, one person, from having to live with the guilt and almost making the mistake that  I almost made, it’s going to be worth the pain…. –Heath White

My daughter is not some abnormal freak … She can, and does, lead a happy, fulfilled life.Mother of a 5-year-old girl with a cleft lip and palate

Video Testimonies

Lacey and Christian BuchananInspirational story of a mother who chose life for her son (Christian), who was born with a rare disorder.

Perfect: Heath White’s confession of coping with his daughter’s diagnosis and building a loving relationship with her.

What To Do

If you have discovered that your preborn child may one of these conditions, here’s what you can do:

  • Talk to your family about your pregnancy and your child’s diagnosis.
  • Research for more information about the diagnosis.
  • Contact organizations and support groups so that you can talk to others who have shared this experience.
  • Find a specialist trained in handling pregnancies.
  • Work with your doctor to prepare a plan to ensure that you and your child receive the proper medical attention during the pregnancy and after birth.
  • Locate a hospital that is equipped to deliver and care for your child. (The hospital should have a Level III newborn intensive unit.)
  • Talk with your family about your expectations and needs after your child is born.

Resources

If you or a friend are seeking more information about prenatal diagnosis, perinatal hospice, and like-minded organizations, please see the following resources:

Perinatal Hospice and Palliative Care

Be Not Afraid

Fetal Hope Foundation

All that Love can Do

Recommended Reading

A Gift of Time: Continuing Your Pregnancy When Your Baby’s Life Is Expected to Be BriefWritten by Amy Kuebelbeck and Deborah L. Davis, Ph.D